TODAY, as we commemorate the anniversary of Terrence Higgins’ passing, we pay tribute to a remarkable individual who was among the first people known to die of an AIDS-related illness in the United Kingdom.
Terrence Higgins, a name that became known worldwide, was more than just a symbol of the battle against HIV and AIDS. He was a charismatic and fun-loving individual, cherished by his close circle of friends. However, it was after his untimely death that his name gained international recognition. While many associate him with his tragic demise, it is essential to remember that Terry lived a vibrant and extraordinary life.
Terrence Lionel Seymour Higgins was born in June 1945 at the old Priory Mount workhouse in Haverfordwest, Pembrokeshire. Growing up in the 1950s, a time when homosexuality was illegal in the UK, Terry’s journey was marked by challenges and societal stigma. Nevertheless, he embraced life with a dancer’s spirit, known for his unique “wiggle legs” dance moves that captivated his friends in the local dance halls.
The idyllic surroundings of his childhood instilled in him a love for nature, community, and a sense of belonging that would remain with him throughout his life.
Growing up in Pembrokeshire, Terry was influenced by the region’s close-knit communities and the values of solidarity and support that permeated the area. These formative experiences shaped his character and fostered his compassionate nature, which would later play a significant role in his advocacy for HIV/AIDS awareness.
Leaving behind his hometown, Terry joined the Royal Navy in the early 1960s. Although he distanced himself from his school friends, he remained connected to his family, including his mother Marjorie. While Terry’s sexuality was not openly discussed within the family, there were moments when he subtly revealed his truth, like introducing his male companion to his cousin Annie without explicitly addressing their relationship.
London became Terry’s sanctuary, where he found the freedom to live authentically. He worked at the Palace of Westminster, contributing to the official parliamentary report known as Hansard, despite the institution’s historical oppression of homosexuality. Terry’s vivacious personality and love for disco music brought him joy and allowed him to connect with others. His passion for astrology led him to write a book called “The Living Zodiac,” showcasing his diverse interests.
In the gay clubs of London, Terry formed deep friendships with individuals like Rupert Whitaker and Martyn Butler, who played pivotal roles in cementing Terrence Higgins’ legacy. Terry’s compassion for others and his motherly instincts made him a beloved figure in their community. However, both Terry and his friends were unaware of the impending epidemic that would change their lives forever.
Tragically, Terry contracted HIV during a time when the virus was still unknown to the world. Within 18 months of meeting Rupert and Martyn, Terry’s health deteriorated rapidly. He collapsed at the Heaven nightclub and was admitted to St Thomas’ Hospital. The medical staff initially restricted visitations to family members, causing Rupert to assert his role as Terry’s boyfriend. Sadly, Terry passed away on July 4, 1982, leaving behind a profound impact on those who knew and loved him.
Terry’s ties to Pembrokeshire were not solely limited to his upbringing. Throughout his life, he maintained a strong bond with his hometown, cherishing the memories and relationships forged there. His connection to the county and its people remained an integral part of his identity.
As the HIV/AIDS epidemic began to unfold, Terry Higgins drew strength from his Pembrokeshire roots.
In facing the challenges posed by his diagnosis, he found solace and resilience in the enduring spirit of the community that had shaped him. It was this indomitable spirit that empowered him to confront the ignorance and stigma surrounding HIV/AIDS head-on, becoming a trailblazer in the fight against the disease.
Even after his passing, Terry’s legacy continues to resonate in the county. The local community remembers him with pride and admiration, honouring his courage and determination. His story serves as a reminder that from humble beginnings in Pembrokeshire, one person can make an extraordinary impact and inspire change on a global scale.
In recognition of Terry Higgins’ profound connection to Pembrokeshire, his portrait is displayed at St Fagans National Museum of History in Cardiff. This representation ensures that his memory lives on, not only within his hometown but also among the wider public who visit the museum, providing an opportunity for people to learn about his life, his contribution to the HIV/AIDS awareness movement, and his enduring links to Pembrokeshire.
In the wake of Terry’s death, his friends were determined to raise awareness about HIV and AIDS and revolutionize the way society addressed the illness. Their efforts resulted in the creation of the Terrence Higgins Trust, a charity that has garnered support from superstars, royalty, and ordinary individuals alike. The Trust has played a vital role in medical research, treatment advancements, and promoting sexual health education, transforming HIV from a death sentence to a manageable condition.
Terrence Higgins was more than the first named person in the UK to die of an AIDS-related illness. He was a vibrant, compassionate individual who lived his life with exuberance, inspiring those around him. Although his passing marked the beginning of a challenging era in the fight against HIV and AIDS, Terry’s legacy continues to be a catalyst for progress and a symbol of courage. The Terrence Higgins Trust stands as a testament to his enduring impact on the world and his unwavering commitment to helping others.
